Summer in the desert

Well, we're about to head East for the month of July. It's just too hot here. We're blessed to have family to escape to. Though some of that time will be in Alabama where I don't think it's going to be that much cooler - not to mention the humidity factor.

We went back to the Plastic Surgeon to get our postop appointment with him. He rubbed her head all over, double checked a few milestons and gave her the ok. We had been concerned about a small bump on her forehead that was sticking out. It looked like a mosquito bite. He assured us that it was just a leftover stitch from her surgery and that it would dissolve soon. In fact, it was so quick, I didn't even really get a chance to take a good picture of it. As the swelling continues to come down, more bumps and unevenness show up, but he reassured us that it would all even out over time. Here's a before/after shot of her head...unfortunately, my photoshop skills aren't great enough to get rid of the shadow in the after. But you can see that the triangulation/egg shape is pretty much gone. You can also see that the scar is just barely visable. Yay!

Florence is continuing to heal and is growing and developing right on schedule. She is sitting up now - it's amazing, one day she couldn't do it, the next day she could. We went to Kiddie Kandids the Friday before Father's Day pictures, and they asked if she could sit. I said "barely" but she is upright in all her shots, and from there it was no turning back! Now she'll actually sit in the middle of the floor and play with toys or watch tv for 15-20 minutes alone before she starts to get tired or lonely. She is still inclined to topple - in the picture with the legos, you can see a little redness over her right eye.

We had started baby food over Memorial Day weekend. We noticed some intolerance to the rice cereal, so we kept taking a break and starting up again. Eventually we just moved on all together to other types of baby food. She started out ok, but then started refusing food all together. This, coupled with a temperature and a swollen fontanel (the soft spot) led me to take her to the Doctor. It turns out that she had an ear infection. She's already shown reactions to amoxicillan so we went to Zithromax. She was ok for this until about 2 days in when she broke out in a rash all over her trunk in a matter of minutes. Fortunately, we happened to be at the Dr. for her 6 month checkup, so she wrote us another script. She also told us to lay off the food until she was totally feeling better. I'm bummed for her, but in a way it was just a useless exercise since she wasn't really eating. Hopefully she'll do better next time we try. She is also cutting her bottom teeth - the poor peanut can't catch a break. By the way, when we called the Neurosurgeon with concern over her swollen fontanel, the nurse told us that all babies' fontanels swell when they are sick, but that most parents don't pay such close attention to changes in their babies' heads.

In other news - I do have three other children, and no other website - the summer is flying by. Charlie has started violin lessons - I am teaching him and he seems to have a real knack for it. I'm hoping to teach some piano lessons in the fall in order to afford a real teacher for him. Lucy has been continuing her gymnastics - class attendance is small, so it is almost like private lessons, however, I really regret not putting her in camp. Maybe next year. Alexander is getting so grownup I can't stand it. I'm hoping to find an activity for him in the fall - something with balls, no doubt, so that his only outlet won't be riding in the car to the others' lessons. He also has a really musical ear, but I think he is still too young for any musical training. We've been hanging out quite a bit with our neighbor friends, though they just left for Montana for three weeks, so we'll be on our own for the remaining 10 days until we leave. We're also trying to organize the house a bit - get rid of clothes that don't fit (bye, bye maternity clothes!!!! finally!!), make room in Lucy's room for Florence (she's still sleeping in my room), we brought the arcade that Tony built in from the garage - it got too hot to play out there. Most days I don't feel we accomplish anything great, but the days disappear just the same. We're really looking forward to our trip out of town and will probably start packing soon.

Oh - and we did get fantastic news about my dad's prostate cancer. After surgery, they biopsied some lymph nodes to make sure it hadn't spread and he is completely clear. So while the recovery is tough, it's wonderful to know that he has no chance of getting prostate cancer again. He and my mom seem to be getting on well given that he is now home 24/7 and probably a little frustrated with being unable to work. Mom is busying herself with home improvements and dad is absorbing probably a book a day and catching up on movies.

Wow. It's been nearly a month since I wrote last. Now, the kids are out of school and we're trying to kickstart our summer schedule so it won't all be filled with video games and wandering around saying "I'm bored". Florence took her first hike up Hole-in-the-Rock. I did the climbing, of course, while she rode in the Baby Bjorn, but I think she enjoyed the view. She has also started eating "real food" - and by that I mean, rice cereal. She acted as if she'd been waiting for it her whole life. She gagged a few times, but otherwise really seemed to manage to get the food to the back of her mouth and down her throat with little trouble. We'll starting adding bananas today.

Florence goes back to the plastic surgeon next week for a checkup. She really is looking good. The swelling continues to go down and now you can start to see the shape of her forehead. If you look closely, you can see a piece of "hardware" sticking out in the middle of her right side. There's also a slight ridge - I'll feel better once the Doctor has a look at her. You know, if God gives you a bumpy head, it's easy to accept. But if you pay big money for one, it's another story alltogether!! Her eyes still look a little puffy - it's so hard to know if this is how she's going to look or if she will continue to change.

We continue to make plans for our trip back east for the summer. We leave for Alabama on July 2 to see dad's family and then up to DC to spend time with mom's family. My dad has surgery on June 4 for prostate cancer, so my mom wanted him to have a good six weeks of recovery before we showed up with all the kids in tow. We're praying hard for my dad's surgery - we take a small bit of comfort in knowing he really doesn't have a choice. Please keep us in your prayers.

3 weeks

To look at Florence, you can hardly tell anything has happened. I had bought some cute little headbands when I envisioned I would be hiding a serious scar until her hair came in around age 2. However, you really have to stare at her to see anything. Her hair is already starting to grow in - she had stubble where they shaved her for the surgery. The swelling continues to go down, though it's hard to tell that there's really any left - only those that know her the best can still see it (at least I hope that it's swelling - I would hate for her grandfather to remark on her "basketball head" forever). She does occasionally have crying jags where I wonder if she has any pain left, but I'm pretty sure she is also teething, so it might be that. Of course, I still worry that everything is ok in there, and I get nervous as she works on sitting up or when she has floor playtime and older brother runs toys and small furniture over her. But I suppose this worry is normal even for a baby that hasn't had major surgery.

Clean bill of health

Here she is with her big brother Charlie. We went to the Doctor yesterday, two weeks plus a day after the surgery. There is still a little swelling to go down, but otherwise, we are starting to really see what she is going to look like for the rest of her life. They took out her 52 staples and gave her a clean bill of health. She cried while they removed the staples, but was fine right after. Here are some close up pics of her staples, and her with her nurses Mary and Joyce.
We've been given the ok for summer travel and said that she is out of the woods unless I drop her on her head or something. She is a happy baby with lots of laughing and smiling, and we are so happy to be this far out from the surgery. Here she is with Dr. Moss, her neurosurgeon.

13 days

Florence is still doing really well. It's been one week since our ER trip, and she's run no fever or showed any signs of anything being wrong. Friday evening, we went to my sister's for a birthday party and all her nurse friends were there. They kept commenting on how pink she looked (as opposed to pale and anemic) and how good her incision looked. That made me feel better as I'm still a little inclined to believe the worst about anything. Her swelling continues to go down and while she still has some bruising on her head, her eyes look normal. She has started doing this funny thing with her mouth where she sucks in her bottom lip when she smiles. This little trick has showed up about the same time as her recovery, but the timing is most likely coincidental. Anyhow, it makes her smile sweet and shy, especially with her eyes being still a little heavy lidded. She is good natured most of the time, though her temper continues to rear its ugly head in the evening. We've been receiving meals from our Marriage Encounter group which means that I only have to feed the brood rather than try to prepare a meal during the "whine and dine" hour. My neighbor and her daughter come over often to make sure I get a break from holding her all the time - I'm still not inclined to let her fuss it out - she is going to be SO rotten when this is over. My mom left Saturday so I'm back to doing my own chores and entertaining the toddler during the day. I'm so grateful that she was willing and able to come as long as she did, not everyone has that. We are incredibly blessed with so many people coming to help us out, really.

We're starting to venture out of the house a bit - going to the b'day party, going to church, today we took Alex to the park with his cousins and my sister. She's doing great and probably happy to get a change of scenery too. We go on Thursday to take out the staples - I'll feel good to get reassurance from the doctor that everything is as it should be.

9 days later

Things are improving slowly but surely. Her eyes are really starting to look open now and I'm sort of pushing her back into her old schedule. She is sleeping really well at night. She is a terrible napper, but she was that way before the surgery. She hasn't been running a fever since we came home from the hospital the second time so that's good. She also hasn't seemed to need the Tylenol either, though we're not deliberately denying it. I'm beginning to see my beautiful baby girl again, though there is no denying that even once the swelling is completely gone, she will look different. That is what we paid the big bucks for. I look back at the before pictures and I feel a little sad at the cutie-patootie we left behind.

One week mark

I missed a few days because she had to go back to the hospital. She began running a fever Monday morning and they sent us to the ER. When we got there, the blood tests showed that her white blood cell count was high and her red blood count was really low. They checked us back into the PICU and gave her a transfusion and IV antibiotics. Fortunately they were able to find some of the donor directed blood left over from last week. Now, she has my sister's blood in her - they are forever linked. Even though they ran many tests, they never found a reason for her elevated blood levels and after one night and the full day Tuesday, they discharged us again with instructions to watch her closely and come back if we felt like she needed to. But so far, she has no more fever and is doing very well. We are still trying to get back to a normal schedule (she was up a few extra times during the night), but she is eating much better and I have confidence we are really on the mend now. My mom is still here caring for the other kids, a real Godsend. We have until Saturday to rest and recover before she goes home. Her eyes are both open now, though there is still some swelling and bruising . Her scar is healing nicely and we will go to get staples out next week. I'll post pictures soon - our internet is out and I'm borrowing a neighbor's computer just to update everyone.